Lived experience

I've been meaning to write about tattoos, but an assignment I'm doing on the difference between grief, sadness and depression and a lecture I went to this morning have me thinking. The idea of the lecture was to give student nurses an insight into mental illness that we may not otherwise get, a lived experience story from the point of view of a 'consumer' and that of a carer. Jayne Newling came to speak with us. She lost one son to mental illness when he took his own life and both of her other sons have lived with mental illness and now consider themselves recovered. Jane has a journalist background and wrote a book called Missing Christopher that looks brilliant. I have it and plan on reading as soon as study is over for the semester.

I'm going to cry when I read the book. I know I am because I cried during the talk today. I wasn't doing ladylike eye-dabbing, my body was vibrating with silent sobs and I was worried that snot would drip down my face coz I didn't want to disturb the room by blowing my nose. There were a lot of tears in the room so I didn't feel terrible, but it wasn't great.

Part of the reason it was so difficult for me to listen to was that I saw it from both sides. I am a mother to two boys and I'm deeply sure that my biggest role in life is to protect my boys from harm, and give them the tools to deal with the bad times when they come along. There is a history of mental illness in their family (not only me!) which increases the likelihood of them suffering from mental illness and the death of a child, is every parents worst nightmare. If you are a parent reading this there is every chance you will get a lump in your throat just reading this, let alone having someone tell you the details of their child's suicide.

Then there is the other side: I was a child with mental illness. I don't remember a time when I didn't at least toy with ideas of my own death, and by 10 (yep, ten years old) I had not just thought about taking my own life, I had a very concrete plan. I was too little to be able to have much agency, but the one lethal thing I had access too was heights. At age 10 my father was living in a 7th story apartment and I would go out on to the balcony and try and work out if I would definitely die if I jumped off. I thought I probably would but I didn't know how to get a definitive answer - if I asked someone they might see/guess my plan and remove access. I thought adults could pretty much read my mind. The time I remember getting very close to going through with it was summer, the window was open, my brother was asleep but I was awake and unhappy. I climbed from my bunk to the window and sat in the gaping window. One leg hung down inside the room and the other was hugged to my body. My head was under the level of the open window, my scrawny little bottom fit comfortably on the flat of the sill, half in and half out. I remember so clearly being desperate to end my life, believing that the world's population was already too big (remember this is around '83 and we had just come out of fears about peak oil etc) and that we could just fix that with all the people who didn't want to be alive being able to die. Euthanasia.

The big question is what stopped me, what are protective factors for a 10 year old? For me there were two things: fear of failure and preemptive guilt over the pain I would cause my mother. The horror of having to face my family after failing at suicide made me sick with anxiety (and still does) and the thought of my mother living without a child of hers was too sad (and still is).

The rest of my childhood is a dysthymic haze. There was anxiety, bullying, perfectionism, guilt, isolation and then some things that brought joy - connection to friends and family and anytime I managed a sense of self-efficacy (oh how little things have changed for me!). My next episode of serious suicidality was at 16/17, then again at 21, then 26/27 (that one was bad and lasted over a year), 28 (when I got my first diagnosis). Then things were up and down, with bouts of premenstrual dysphoric disorder until I was postnatally depressed at 33 and then depressed again at 37. By 42, last year, I ended up only feeling safe in hospital. Now I am in remission, or as the current best-practice term has it, recovery. I'm mostly happy, I deal with everyday stressors but don't really feel recovered, I feel like the meds I take and the self care I do keep me well for the moment, but if something comes along that messes with what is important for me I could get sick again. Anytime something crashes into my feelings of self-efficacy or the connection I have with those close to me, I can't promise my brain won't slide off into the crazy again.

So what is this history lesson in aid of? Jayne Newling and her son Nic strongly feel that talking about mental illness, including experiences of illness will help people get more and better help, younger, and this will save lives. Nic worked for the Black Dog Institute and has recently set up a group called the Champions. There is no way to know how much easier my life might have been if I had been diagnosed and given good help when I was a kid. Imagine if I wasn't totally terrified of telling people that I hated my life so much I wanted to end it. Maybe I did and they thought it was just a strange kid-thing? I now wish I could have told my loving and supportive parents. Admittedly, they were busy with their divorce and new lives and I didn't want to be a hassle. Yep, I was 10 and thought telling my parents I was suicidal would be an unnecessary burden for them. I don't want any other child to feel that, and I don't want any other parent to live with the guilt that my mother has lived with, since she's known how depressed I was and that she couldn't do anything to help.

In my own way, at a personal level, I have been doing the same kind of work as The Champions - sharing bits of my story and creating a community of like minded people who have lived experience or 'loved one experience' where 'R U OK' is an everyday question and where people feel safe and supported when they admit that they really are not OK  (I like to call this group my 'friends'). If I can normalize this within my own little sphere of influence then just maybe it can spread. I want to end this by thanking my near and dear ones; for coming with me, for letting me out you, for outing me and for always having my back.

Tanya asked what an Atheist Hindu was...

..and I told her I didn't really know, but I would try and think it through. She asked in the context of me claiming that my Pundit acknowledging 'Atheist Hindu' as a thing. It's something I've been thinking about a bit recently, as I try to make sense of the difficulties I face and when I revel in feeling like I am fulfilling my dharma as I study nursing and raise my kids. I was brought up by a non practicing C of E father, a mother lapsed from her strict Methodist upbringing to vague eastern hippiehood and I went to an anthroposophical school. I was not destined to get all fundamental about any religion, but to give all of them a certain grudging respect.

I don't think there is a divine plan, or really a divine at all. I don't believe in anything supernatural, but I know there is stuff that science can't explain (yet). I suspect our minds are more powerful than we give them credit for.

Hindu gods can be approached as a manifestation of a feeling, or a desire, or even perhaps a social construct. As such I give a respectful little (mental) nod and a wink to Ganesha (Remover of Obstacles) before I start some new endevour. In distracted moments I wonder how I would depict Saraswati (Wisdom and Learning) if I were creating a likeness of her (traditionally she has a musical instrument, but that doesn't work for me). Really what I'm pondering in these moments is what obstacles I may have to overcome or the nature of wisdom

I look at my life in terms of fulfilling my Dharma (looking for, and following, my life's path). I don't believe in literal reincarnation, but I do believe that in so far as our actions impact the world, those impacts can easily last beyond our deaths and they are something to be mindful of.

Please, I know very little about Hinduism really, so standard disclaimer: all errors are entirely my own. 

If you aren't comfortable with me claiming Hindu status then I am perfectly comfortable sticking with Atheism

Nursing Prac - the reflection that I couldn't submit to uni

This prac has been a game changer for me.

I've always been a bit 'nursey' - black humour and can talk about gross things at mealtimes. I have endless relatives in nursing and a few of my friends are nurses but over the last three weeks I feel like I've started my induction into a whole new world. It's not just the stuff people talk about - naked bodies and bad smells, although I guess that's part of it. It's not just that I was useful and made a difference to a few people's days, although that was pretty important to me too. It's something else, that I'm finding much harder to put my finger on.

When you become a parent you are generally pretty blindsided. Although people talk about it, you hear the jokes, you know there is going to be sleepless nights and dirty nappies and you hope with gritted teeth that you are going to love the little thing when it arrives. But nothing, no amount of pet-ownership, nannying, teaching, reading or siblings can prepare you for the visceral reality of it. I remember back in the early days talking with my wise mum mates, lamenting the fact that no one prepared us and coming to the conclusion that no one told us because there is no combination of words that can make those feeling make sense. There is simply no way to warn anyone else of the horror and the joy of it all. I suspect it is this, multiplied by many, without the social approval and the vast proportion of the population that go through it, that prevents so many veterans from talking about their experiences in the way. No words can convey the fullness of the reality.

And finally, here I am, being admitted to the only club of which I have always wanted to be a member, without understanding there was a club or what membership entailed. I do look at naked bodies differently now (FYI old bottoms are strikingly similar, everything else is surprisingly unique) but I'm more interested in their skin tone and their abilities than their shape, whether I'm going to be able to manage whatever I'm doing without tearing skin that has become tissue paper fragile with age; whether they are going to be able to lean forward so I can wash their bottom without them standing; and how I can best help these people maintain their dignity in the most undignified of situations. As for the bad smells, I use the advice of my mother, wise old nurse that she is: breathe through your mouth. I am also in favour of surreptitiously chewing minty gum.

But the other part was the amazing part, bodies and dignity I always knew I could manage, but how to manage my own feelings when someone old and in pain gazes into my eyes, not knowing who I am, except that I am in a nurses role, and asks pleadingly 'when am I going to die' (I replied with 'I don't know' - that was over a week ago and she is still alive, but is rarely conscious now. She has no visitors so I never worked out where the garden-fresh roses or gardenias in the little vase near her bed came from). What can I say when people say 'I really don't know why I'm here' and you don't either, except they forgot they had the same conversation with you yesterday. And every day before that. So I concentrated on being my very own tiny-but-strong force for good - taking my time when I moisturize battered old legs to give the gentlest leg massage in the world, using two teaspoons of instant when making coffee for the lady who I know likes it extra strong and reciting any tiny snippets of any old poems that I can dredge up out of my memory (Ogden Nash is a favourite!).

For the record, in the 'reflection' I was required to do for my assessment, I did the written equivalent of mumbling about wound dressings and how I want to improve my aseptic technique. That isn't actually wrong, I do want to improve, but really, that's like asking a veteran about the war and being told that whenever he got new boots he got blisters. Important in it's own way, but missing the point.

Short post: atheism, kids, diwali and my nursing studies

I'm kinda joking with that 'short' part, but considering almost all the big life issues are jammed into the post title, and some of them are somewhat contradictory it will be short. You will be pleased to know I don't have anything to say about politics today.

Have I mentioned before about how I sort of consider myself an atheist Hindu (atheist first, Hindu second)? It came about when the wise Punditji who performed our wedding ceremony telling me, when I mentioned I was an atheist, that the Hindus 'have room' for that but the Christians probably didn't. It's only relevant because I am still trying to work out how to talk about religion with my kids. There is nothing better able to to joyfully force one to consider one's own position on difficult issues than trying to explain where you stand to some bright and inquisitive school kids. In this case I was explaining to Asher why we celebrate Diwali ( AKA Deepavali and other spellings and pronunciations. translating Sanskrit into the various Indian languages and then into words that can be spoken in English is tricky). We bought some lottery tickets to give to Sanjay and his dad as Diwali gifts and a lovely candle for Sanjay's mother.

It also seemed to be a good time to talk about the bigger meanings of the festival, so I reminded him of the two stories I know about Diwali, both familiar to him from 'Amma tell me about Diwali' by B. Mathur. One of the stories sees the goddess coming into the home of a poor woman, working late even on a festival day, and granting her wealth. The other story, the main story, is from the Ramayana and describes people lighting lamps to welcome their banished King and Queen home after fourteen years in exile (er, that was... brief. It's a massive, intense, tragic, brilliant epic!). I was trying to think through appropriate ways to talk about the meaning of these stories as I was talking to Asher and I came to the idea that they are both about shining a light on the path of right - either in terms of personal hard work or using the ancient city of Ayodhya as a metaphor for self and the lights help to lead us to 'right action' - whatever right action looks like to us.

Which brings me, neatly, back to my nursing course. People keep asking me how my course is going; everyone from the crossing supervisor at the kids' school through to my family and my therapist mentions it and for sure sometimes it's just politeness but often people want to really know about the course and how I'm feeling about it, and wondering if I'm going to enjoy clinical nursing. I generally answer with a flippant comment about being busy, stressed or the fact that I've just finished first your again (!) and sometimes I go to say 'I should have done it years ago' but the reality is slightly more difficult to talk about. I feel like whether I enjoy it or not is almost irrelevant. I am fulfilling my dharma. I am on my path. The course is tough, tougher than my first degree and although I don't have the memory I did then I am wiser. I still agonize over my assignments. But whatever stress and drama it causes me, I am where I'm meant to be. I don't think I should have done nursing straight out of school - my dad was very well known in the field and in my 20s I wouldn't have been able to answer the 'but why didn't you study medicine' without shame. I didn't get the marks and also I wanted to distance myself from my family, not follow them into the healthcare field. So now, in my forties, with ten years of tech career, then ten years of mum-ing I am into my next phase - nursing. Maybe for ten years. And because I spent some time thinking about Diwali, and talking to my kids about the idea of a life path and dharma, next time someone asks me how my degree is going I can reply that I am on my path, without feeling awkward or being flippant or dismissive.

More travel!

The whole family was SO excited! Thailand then Singapore! Seeing Clare! Then Tim and Jen in Singapore! Elephants! Legoland! Singapore zoo! We found a someone to house-sit, got packed up and went to the airport for our 9:40pm flight. We started the check in process only to find that the kids couldn't travel on their passports because they only had five-and-a-half months validity. Apparently they would have just flown us all straight home once we got to immigration in Thailand. Now it's one thing to have a 9 hour flight, 4 hour layover in the early hours of the morning in the KL budget terminal then another couple of hours on a plane before reaching one's holiday destination, it's a completely different kettle of fish to be sent back after that kind of ordeal. We called the passport office, we pleaded with the airline, we looked at Asher's face as his big eyes flilled with unshed tears. We then caught a taxi home. The passport office was monumentally unhelpful, telling me that the quickest they could guarantee a passport was a week away (her: "we can have it done quickly at extra charge, which will take you two days from the interview but the soonest I can book you an interview is Friday, so you will have the passports on Tuesday" me: "WHAT?!?")

After we accepted that we were not going to get on the flight (and I stopped arguing tearfully with the passport office at 8pm) our luck changed. The kind lady at the airport post office stayed open to take passport photos, and we got the passport forms, the kind Air Aisia supervisor told us we could change the flight to the next night for free, our house-sitter is the director at Kiran's preschool and she and I sat up til midnight filling in forms and using black humour to take the sting out of the situation. We didn't really tell anyone (except to let Aunty Clare know at the other end) because we were so unsure of what was going to happen next, and to be perfectly honest I was mortally embarrassed that I hadn't seen that one coming and organised around it. The next morning a lovely, lovely woman at the passport office took pity on us and we had the kids passports within five or so hours. We picked up the passports with luggage in tow and caught the train to the airport. The kind supervisor booked us in (no queue) and gave us express passes so there was/will be less queueing at every airport. Even the hotel was very accommodating and changeged our booking without charge.

So after what felt like two and a half days in transit we arrived in Chiang Mai and we are having a fabulous time. More to come about our great visit to Baanchang Elephant Park later....

I luv youse all!!!

This afternoon I went to the park with a bunch of other Kindergerten parents. I'm shocked at how 'on the outer' I felt. I know I'm prone to these feelings (try being bullied at school and growing up with a bit of social anxiety - making nice-nice with the other mothers becomes torture. Ugh. Anyway, it brought into stark contrast what awesome older friends I do have. I was late home, so they hung around my back yard, with their preschoolers. They cheered my kid's first ever wee on the potty then made me lunch and coffee while I went and put my tired kid to bed. They laughed at my jokes, they commiserated with my failings and difficulties. At other times they have ensured that a drunken Keda got home safely, they still love my kids despite having seen them at their worst, they appear to cheerfully tolerate my grubby bathroom and they do a really good job of pretending to be interested with whatever my current project is (Chooks this month). In short, these lovelies, and my other old mates, are the ones I want around my when the proverbial hits the fan. Thank you ladies :-)